On 6 March 2018 PSR hosted a Volleybal event for the so-called “Butterfly Children”. These are children that are affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).

The evening started with a generous donation of €1500 from Ergomed to Debra Nederland for organizing a care-free day for both the Butterfly children and their families.

The second part of the evening was dominated by our sportive activity volleyball, which we played with a total of 13 teams. The teams donated money to play volleyball and to help the Butterfly Children.

We appreciate all teams, sponsors and supporters that contributed to this successful event: OCS Life Sciences, Riksja Travel, De Raad Makelaars, iFocus, Cocensus, HollandBio, Schenk Makelaars, Boehringer Ingelheim, ProQR, Labré Advocaten, Google and PSR. Together we raised more than €5500 for the Butterfly Children!

We hope that you will join us again next year. Photo by Erna de Jonge.