A new film festival showing films from around the world which addresses the challenges of life with a rare disease. This interesting event will take place October 3rd, 2017 in Boston, USA. With 7,000 rare diseases no doctor can be expected to be familiar with all of them. And even if you are already up to date on the clinical science these films place that knowledge in the context of how families actually live while facing these disorders.
We believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. These films put the often abstract and dire clinical information into the context of real people living their lives.