Fundraising for Epidermolysis Bullosa (EB)

On 6 March 2018 PSR hosted a Volleybal event for the so-called “Butterfly Children”. These are children that are affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB). The evening started with a generous donation of €1500 from Ergomed to...

Rare Disease Day 2018

        We Care About Rare! For Rare Disease Day 2018 we organize a fundraiser for kids with Epidermolysis Bullosa and their families! https://lnkd.in/eVzCU74 for more info on the fundraiser click here https://lnkd.in/eXXn74m...

A LEADING ORPHAN DRUG COMBINATION

Ergomed and PSR Orphan Experts have joined forces, creating an industry-leading rare disease CRO offering. Ergomed’s global reach and PSR’s specialized focus on orphan drug development will enable the improvement of lives of patients and families impacted by rare...

Wishing You A Successful And A Happy 2018!

The PSR-team wishes you and the whole Rare Disease Community a prosperous 2018! Together, we’ll keep our focus on Patient Centricity in order to help those who battle disease every...

Disorder: the Rare Disease Film Festival. October 3rd, Boston USA.

A new film festival showing films from around the world which addresses the challenges of life with a rare disease. This interesting event will take place October 3rd, 2017 in Boston, USA. With 7,000 rare diseases no doctor can be expected to be familiar with all of...

Relationship PSR Orphan Experts – aparito

At PSR we are fully committed to true patient centricity in orphan drug development; In line with this principle, we formed a Patient Organisation Advisory Board based on a growing recognition – both within the biopharmaceutical industry and regulatory agencies – that...

Henri Termeer, key biotech leader, passed away at 71 years old

We regret the passing of Henri Termeer. As one of the founders of the modern biotech industry, Henri has changed the lives of patients around the world through his ongoing dedication to discovering breakthrough treatments for those with rare diseases. Henri Termeer...

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